I never imagined that I would have a cleft effected child but I did.
I have learned so much during our on going journey and I want to inform other parents who might not know where to go for supplies, information or some basic knowledge.
This page is here to help you make decisions that are best for your family and situation.
If you have just received the news that your child will be born with a cleft lip and/or palate, one of the best resources has to be www.cleftopedia.com. This site was started by two Mom’s who thought there was not enough information out there. One of the Moms, Danielle, I met through our weekly cleft appointments at NYU. Her son Will, is a month older than Henry.
The website is amazing and has so many resources, along with tips, real stories, even cleft teams.
Support is crucial when dealing with a cleft. I am so thankful for the Facebook Group, Cleft Mom Support
These Moms and some Dads are supportive, kind and best of all understanding. This is a place for us to vent, ask questions or just to show off our little ones.
It’s very comforting to hear about the journey’s many parents of cleft affected children have gone through..the good, the bad, and the heart wrenching.
I have written about my journey, and below are other parents blogs about those journeys. Feel free to browse and connect!
I also have a Pinterest board dedicated to cleft lip/palates for more information.
*If you are cleft parent and would like to contribute to the board please follow and send me your pinterest email address.